Neurofibromatosis Northeast

Neurofibromatosis Northeast
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Non-Profit Organization

About Us

Neurofibromatosis Northeast is a non-profit organization incorporated in 1988 by a group of people who were in some way affected by the genetic disorder known as neurofibromatosis (NF). Our mission is to promote research, awareness and advocacy.

Rep/Contact Info

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Lauren Gilbert
Director of Fundraising
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Sara-Jane Griffin
Fundraising Manager
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Sharon Klein
Executive Director
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Jenny McDonald
Gift and Data Coordinator
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Anne Patterson
Director of Patient and Clinic Outreach
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Christi Shannon
Administrative Assistant
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Kimberley Trainor
Operations Manager
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